I’ve hurt for her for I don’t always go to disney wait yes I do shirt. I’ve seen the longing look in her eye watching the other kids at the parks, looking at the rides she not up for- all the things she used to love but can’t do. I’ve seen her notice the other children and even adults stare at her. Josh and I consciously tried to stand between her and anyone staring, but we weren’t always able to intervene. Why would they stare at her? Don’t they know that hurts? Sophia is not the disabled child they see- she is an athlete, a dancer, a lover of life, lover of animals. She’s smart. She’s so very funny.
I don’t always go to disney wait yes I do shirt, hoodie, sweater and v-neck t-shirt
Best I don’t always go to disney wait yes I do shirt
I don’t always go to disney wait yes I do shirt is the most generous, kind, loving child. She’s so much more than the wheelchair and steroid body she’s in. I’ve listened to her little body struggle beneath the weight of these drugs, struggling to make every move. I’m listening to her now- hard heavy breathing, unable to get comfortable, waking up constantly throughout the night. I saw a picture on my dads camera of Sophia eating and me looking down watching her. At that very moment I was trying so hard not to cry.
Everyone was easily raking their food into their mouths and my baby, my baby was struggling to scoop her food up onto her fork and get it in her mouth. Each bite was work. She was so intent and focused. I was so proud of the effort she made. I kept wanting to help her, but she is fiercely independent and didn’t need me. It hurt me so to watch her struggle. Everything she does is work for her, even getting comfortable in a chair or on the bed- work. Going to the bathroom-work. Getting dressed-work. Sleeping-work. Everything she does is hard work for her. It makes me so sad. Deeply deeply sad.